Camden has reverted back. We are not sure why, but things he did before (quite well), he's struggling with. I noticed this last week and I didn't know whether it was because he was sick or not or because of the reflux flare up. Technically, he didn't have PT last week because we did the evaluation during his PT time. The PT was able to sit and observe Camden while we talked at the meeting though (something she normally doesn't do because she's working with him usually) and she didn't like how he moved at all. She didn't realize how downpat he really had this monkey moving way and the way he always favors his right side....always.
I discussed my concerns with her today and as she worked with him, she noticed too that he was not doing things he had done previously. She feels that it is a direct result of the reflux. It seems to her that whenever Camden gets sick or a reflux flare up, he doesn't progress and even goes back. When he's feeling good, he makes great progress. It makes sense really. I just don't like it one bit.
He was doing so SO good. Why, why, why? I was trying so hard to focus on what he could do and be thankful for who HE is, just the way he is right now. But let me tell you, it's awfully hard to do that when he reverts backwards. Now is a time when he should be going forward. Ms. Heather (his therapist) had intended on working on his walking with him and really pushing that seeing as how he's 16 months old officially now. Instead we spent the whole session working on things that had been introduced in the first few months of therapy. Argh!!!!!!!!!!!! Why????
I asked her about the neurologist, whether we should or shouldn't. She seemed just as unsure about it as I am. This is something nagging me. Just when I think I'm okay with not going, then I think we should. And then when I think we should, I think maybe we're overreacting. I'm praying so hard for direction.
Last week another phsyical therapist did recommend that we seek a neurologist. I had such a hard time with this (still do)! I mean, I've thought maybe we should for a bit now, but actually hearing that another professional thought he should see a neurologist was so hard for me. I cried and cried half the day. It terrifies me.
Ms. Heather did feel that 15% of her RIGHT NOW felt we should take Camden to a neurologist. But she said she couldn't say for sure until he was walking. What she was possibly thinking was wrong (sorry, the name escapes me right now) has to do with the brain and it's similar to a stroke where one side of the brain is turned off. Once he's walking, she can better see whether he's using one side. If he walks symmetrical, using both legs equally, then we're good. Just more therapy. If he doesn't, then we may have some issues. The thing is, even if there is something wrong in the brain, it really wouldn't change how she is treating him. At least that's what she says. I get that, but I also think of how much he already favors one side and how it's always been like that, how he's always been so far behind developmentally. Is the reflux really to blame for all of that????
We are going to be doing craniosacral therapy with Camden to see if that helps. He has his first appointment on Monday, the 30th. That therapist looked at him and could tell by the way he was sitting that he preferred one side over the other! Camden's had one session before, back in June, but we put off further therapy sessions because we couldn't afford to do both chiro and cranio and I didn't know if we really needed the craniosacral work. Now I feel that the craniosacral work is kind of our last resort to try and get things right. It's another cost, but God provided a relief in our chiropractic bills, so we're going to go forward with the craniosacral therapy.
We had Thanksgiving last Saturday with my husband's family. Camden had a cold and apparently ate something that did not agree with him. His reflux flared up and he has a terrible yeast infection again. His cold sounds, once again, like it's settling in his lungs so we may need to do some breathing treatments...we'll see. He goes back to the chiropractor tomorrow...thankfully. Maybe an adjustment can help knock this cold out of him like it has before.
I continue to go forward steadfastly praying for direction and answers. I am doing a Bible study on healing and the power of God's healing. I need to let go of all my worries, doubts, anger and turn it all over to God. That is so much easier said than done!