Monday, November 30, 2009

Logan!

My Monday morning started with Logan deciding that he was big enough and strong enough to pour himself some apple juice…..a FULL pitcher of apple juice.  And then he thought cleaning it up with A napkin was enough to take care of the  mess. 

I tried explaining to him that it’s too heavy.  And all I got was tears and “But, Mom, I AM strong!”

Oy!

Saturday, November 28, 2009

Black Friday

I am proud to say that I experienced my first Black Friday.  I never saw the point of getting up at the crack of dawn—wait, BEFORE dawn and fighting crowds of people.  Not my thought of  “fun.”  I always enjoyed staying home and decorating  for Christmas instead.  My sisters have done it for the past few years and this year they said I was going to do it with them.  I am happy they made me go! 

Isaac even joined in.  He had heard so much about Black Friday that he just really wanted to see what it was all about.  Needless to say, it was a bit too much shopping for him and I don’t think he’ll repeat it next year.  :)

I was up and out the door before 4 a.m.  We hit  Kohl’s, Target, K-Mart, Wal-Mart and Toys R Us…..all before 9 a.m.  There really ARE some great deals to snatch up.  Although I will be searching the ads in the upcoming weeks to see if those deals really were a one-time thing.  The crowds, long lines really aren’t THAT bad, but we did avoid the mall and electronics stores.  I wasn’t going near those places! 

I’m happy to report that I have more of a head start on my Christmas shopping this year than I ever have in the past (I am a procrastinator!) and the best part of Black Friday was spending the time with my sisters.  We made memories we’ll always remember! 

Thursday, November 26, 2009

Happy Thanksgiving

I’ve been sitting here reading through my friends’ blogs and postings and thinking of what I want to write today.  My heart is overflowing with thankfulness this year.  And I’m not quite sure how to put that into words.

Thanksgiving is my favorite holiday.  I love it because there are no furry bunnies, leprechauns, or old men in red suits.  There is no pressure to find the perfect gift on  Thanksgiving.  It is simply a holiday to reflect on what we are thankful for.  It is a time to spend with family remembering old memories and making new ones. 

This year I am beyond thankful.  I am in love with my life.  God is opening my eyes to so many wonderful gifts and I am so thankful for His wisdom.  Every day we are given the gift of life by God and we need to be thankful for each day. 

I am thankful for God who died for my sins.  I am thankful to know Him and have a relationship with Him.

I am thankful for my husband.  He is the love of my life and although we’ve had our fair share of struggles, we continue to grow closer through each one.  I look forward to each day with him and seek God to be at the center of our marriage.

I am thankful for my four boys.  Each day is an adventure and I treasure each moment.   God has made each one of my boys special in their own way.  I am thankful that I am able to have a large family.  We have so much fun and enjoy much laughter together.

I am thankful for all the little things that can be taken for granted each day.  I count them all as blessings from God. 

We ARE so blessed, even with our trials, aren’t we?

Tuesday, November 24, 2009

Reverting back

Camden has reverted back. We are not sure why, but things he did before (quite well), he's struggling with. I noticed this last week and I didn't know whether it was because he was sick or not or because of the reflux flare up. Technically, he didn't have PT last week because we did the evaluation during his PT time. The PT was able to sit and observe Camden while we talked at the meeting though (something she normally doesn't do because she's working with him usually) and she didn't like how he moved at all. She didn't realize how downpat he really had this monkey moving way and the way he always favors his right side....always.
I discussed my concerns with her today and as she worked with him, she noticed too that he was not doing things he had done previously. She feels that it is a direct result of the reflux. It seems to her that whenever Camden gets sick or a reflux flare up, he doesn't progress and even goes back. When he's feeling good, he makes great progress. It makes sense really. I just don't like it one bit.
He was doing so SO good. Why, why, why? I was trying so hard to focus on what he could do and be thankful for who HE is, just the way he is right now. But let me tell you, it's awfully hard to do that when he reverts backwards. Now is a time when he should be going forward. Ms. Heather (his therapist) had intended on working on his walking with him and really pushing that seeing as how he's 16 months old officially now. Instead we spent the whole session working on things that had been introduced in the first few months of therapy. Argh!!!!!!!!!!!! Why????
I asked her about the neurologist, whether we should or shouldn't. She seemed just as unsure about it as I am. This is something nagging me. Just when I think I'm okay with not going, then I think we should. And then when I think we should, I think maybe we're overreacting. I'm praying so hard for direction.
Last week another phsyical therapist did recommend that we seek a neurologist. I had such a hard time with this (still do)! I mean, I've thought maybe we should for a bit now, but actually hearing that another professional thought he should see a neurologist was so hard for me. I cried and cried half the day. It terrifies me.
Ms. Heather did feel that 15% of her RIGHT NOW felt we should take Camden to a neurologist. But she said she couldn't say for sure until he was walking. What she was possibly thinking was wrong (sorry, the name escapes me right now) has to do with the brain and it's similar to a stroke where one side of the brain is turned off. Once he's walking, she can better see whether he's using one side. If he walks symmetrical, using both legs equally, then we're good. Just more therapy. If he doesn't, then we may have some issues. The thing is, even if there is something wrong in the brain, it really wouldn't change how she is treating him. At least that's what she says. I get that, but I also think of how much he already favors one side and how it's always been like that, how he's always been so far behind developmentally. Is the reflux really to blame for all of that????
We are going to be doing craniosacral therapy with Camden to see if that helps. He has his first appointment on Monday, the 30th. That therapist looked at him and could tell by the way he was sitting that he preferred one side over the other! Camden's had one session before, back in June, but we put off further therapy sessions because we couldn't afford to do both chiro and cranio and I didn't know if we really needed the craniosacral work. Now I feel that the craniosacral work is kind of our last resort to try and get things right. It's another cost, but God provided a relief in our chiropractic bills, so we're going to go forward with the craniosacral therapy.
We had Thanksgiving last Saturday with my husband's family. Camden had a cold and apparently ate something that did not agree with him. His reflux flared up and he has a terrible yeast infection again. His cold sounds, once again, like it's settling in his lungs so we may need to do some breathing treatments...we'll see. He goes back to the chiropractor tomorrow...thankfully. Maybe an adjustment can help knock this cold out of him like it has before.
I continue to go forward steadfastly praying for direction and answers. I am doing a Bible study on healing and the power of God's healing. I need to let go of all my worries, doubts, anger and turn it all over to God. That is so much easier said than done!

Thankful Tuesday

The latest thing going around Facebook is to write one thing every day in your status that you’re thankful for.  I thought I’d write one thing on my blog that I’m thankful for every day.  I know I missed yesterday though.

This thought occurred to me last night as I was laying in bed talking to my hubby.  Somehow we got talking about stay-at-home moms and how many of my friends/acquaintances are actually stay-at-home moms, meaning they don’t work outside the home at all; strictly stay home.  The list was rather short.

Of course, when I realized how short the list was, I had to say thank you to my husband.  I am so thankful that he allows me to be home with our boys.  I am thankful that I am able to be the one who is there each morning and the one who ends each day with them.  I am thankful that my husband works so very hard to provide for our family. 

I am also thankful for God’s blessings.  It isn’t easy staying home.  I still deal with my fair share of trials and tribulations and being a one-income family has its downfalls.  But I gladly give up more materialistic things for the time I share with my kids.  I believe it’s the memories that we create, not the amount of toys on the shelves, that kids remember.

I am also thankful that I am able to home school my kids.  So many think I’m crazy when they hear that I home school (and by choice!), but I LOVE it!!!  I love the stories we read together, the conversations we have and the time we spend.  It is something I will treasure when my boys are grown. 

I know staying at home is not for every mom.  But for me, I believe it’s exactly where God wants me to be.  I am training these boys up in the ways of the Lord.  He has borrowed them to me here on this earth and it is my job to raise them to be  Godly men.  What greater job is there?!?!?!?

Friday, November 20, 2009

Hair brush

Like I said, the boy keeps me on my toes.

I walked out the other morning to find Logan brushing the dog's hair with MY hair brush. Oh, lovely.

Up the nose

I’m cleaning the carpets the other day and as I’m doing this, I hear a little voice following me around.   You know how  you can be so engrossed in what you’re doing, you don’t notice what’s really doing on around you???  That was me.

The little voice (and I do mean little, quiet voice) was saying, “I think I have something up my nose……I think so.”

It took a couple times of this voice saying this before I tuned back in to reality and realized it was Logan.

“What do you have up your nose?”  I said, not really concerned.  I mean, my kids have never stuck anything up their nose.

Logan responds with, “I don’t know, Mom.”

“Maybe it’s a booger.  Do you need to blow your nose?”

As we’re having this little conversation back and forth, I walk into Camden’s room where there is a bean bag filled with those little styrofoam peanut thingies. 

Logan walks over and picks one up and says, “I think it’s one of these, Mom.”  (notice he said I THINK.)

“What?!?  Logan, did you put one of those up your nose?”

“I think so, Mom.”

Sure enough, as I look up into his nose, I can see a little styrofoam peanut way up there.   Ahhh!

I drag him into the bathroom and tell him to be brave while Mommy tries to fish out this thing with a tweezers.  It took several tries (it was way up there), but I was able to get it out.  I was amazed that it could even fit in his tiny little nose. 

And Logan, he sure is keeping me on my toes.  Things Isaac and Eli never did, Logan is doing.  I have to keep my eyes on him constantly because I never know what he’s going to do next.


Oh, and the bean bag had a hole in it and is now out in the garbage cans at the end of the road.

Amazed

I absolutely love Camden’s chiropractor!  She is the best!

I took Camden to the chiropractor Wednesday morning.  We had had some really BAD nights, which I pretty sure was the reflux bothering him.  I also noticed that he would not crawl (with his arms) when I put him in the position and moved his legs for him.  Something he was doing a week or so ago.  He was really struggling with the movements of it again.

The chiropractor adjusted him and said he was really off.  His sacrum was tipped considerably (again), the reflux/digestion spot was off and the neck was out.   She understood that we may not be able to bring him every week (although it’s recommended), but definitely not let longer than a month go by.

And here’s the BEST part:  Since I took him in to the chiropractor, he’s SLEPT THROUGH THE NIGHT!!!!!!!   Ahhhhh…..bliss.

The crawling exercise also went much smoother last night.  He still fights me a ton, but he seemed more able to do it.  We’re back to doing that and the triggering both sides of the brain exercises.  I am back on a determination track!

The chiropractor also suggested dates for the constipation.  She said they can work even better than prunes.  She agreed with me that constipation like what Camden has is NOT normal and that the reflux is most likely being aggravated by it.  She also suggested we try aloe vera juice for not only the constipation, but it can also help soothe the esophagus from the reflux.  She said it doesn’t work for everyone, but it’s worth a try.  The worst thing it could do is give Camden diarrhea, which at this point I would welcome. 

Camden still screams and cries when we walk into his room to put him to bed.  I think he associates his bed with pain.  Putting him to bed,  at night especially, is very hard.  It takes two to four times of putting him down before he finally goes to sleep.   Just letting him cry it out the first couple times doesn’t work.   He won’t stop crying.  He gets so upset and he will cry until he goes hoarse.  And I don’t want to aggravate the reflux by letting him cry for so long.  I’ll give him 10 minutes and if he’s still crying, then I go in and get him and just sit and snuggle him for a bit before attempting again to put him to bed.

I’ve had a rough couple days of dealing with some of these issues with Camden.  I am thankful for music.  It can do amazing things for you when you’re feeling down.  There was one day this week that I just couldn’t stop crying over some news about Camden.  I was a wreck.  I finally took my iPod out, put on the headphones and blared praise music into my ears.  I am trying to focus on the wonderful things that Camden can do and be thankful for that.  God made him and God doesn’t make mistakes.  I need to remember that God has His hand on him.  I need to turn all my worries and troubles over to God and He will give me the renewed strength that I need to get through each day…..and night.

Tuesday, November 17, 2009

PT evaluation

Camden’s been in physical therapy for six months.  It has flown by.  He had his evaluation today.  I was praying that I would be okay with hearing how far behind he was. 

Six months ago Camden was over 50% behind.   They didn’t even really figure it out accurately because they didn’t want to scare us!  Yikes.  That’s how developmentally behind he was.  He is now between 27-33% behind.  Yes, that is still a considerable amount, but he’s made such great progress!  I am thrilled with that!

When the coordinator sat down and started telling me where we were six months ago, or even three months ago, I couldn’t believe how far he has come.  When we started therapy, Camden would not move out of the sit position.  He played with the only toys within his reach and never moved.  He did not roll over or attempt to move at all.  He also did not go on his tummy at all.  He had very weak  muscles.

Although Camden still has some low muscle tone (hypotonia), he’s come a long way  and the therapist is happy at his progress.   We set new goals for six months from now including walking with no assistance and where I’d feel comfortable letting him walk down our gravel driveway without falling.  That’s probably our biggest goal—walking.  We have little things like crawling (so he’s more symmetrical), going up stairs, turning around to go down stairs, etc.  We basically need to get him more independent and out of his “monkey” way of moving.  We also will continue working on getting him to use the right side of his body. 

Camden was having issues with his bowel movements right before the therapist and coordinator came and I apologized, saying I may need to leave.  They both couldn’t believe that the GI thought nothing of Camden being “backed up.”  They were shocked that the GI thought nothing of the undigested food too.  I mean, since Camden has started eating solids, his food has been undigested.  We’ve been blown off about it.  I know some food goes through fairly whole, but it just doesn’t seem normal to be able to tell exactly what my child ate by looking at his poop—every day.  I’m going to take him into his doctor and talk with her about it since prune juice, karo syrup and stool softeners aren’t helping him.    He may have to be on a medicine to help him in that department for awhile.   I am also taking him to the chiropractor tomorrow and I will mention it to her.  She did help with that in the past, but it was always shortlived.

I have also come to another realization.  After Camden’s scope and two enemas, he pooped like six times that afternoon.  And then he slept through the night for three nights in a row.  I was amazed, but I never made the connection.  I think his reflux may be aggravated by his constipation issues.  I’m hoping if we can help with his bowel movements, then maybe—just maybe—I’ll have a happier boy who sleeps much better.  The past few nights haven’t been the best and I have to admit it seems that reflux is the culprit.  Especially when he screams when I go to lay him down. 

I’m on the fence about whether we’ll continue with his GI.  I am not happy with him, I feel that we’ve been blown off about a lot of issues and not taken seriously.  Camden has an appointment next Tuesday and I do not know right now if I will be taking him or not. 

I will also schedule another meeting with a different PT for a third (or maybe this is the fourth or fifth—I’ve lost track!) opinion on Camden.  Mainly I want to know why he only uses the left side, or prefers the one side of his body.  I am going to pick her brain.  I am also praying about whether we should pursue a neurologist now or wait a few years.  I do not know if we want a diagnosis label on Camden just yet for many reasons.  There are lots of things that are limited once a diagnosis is made.

So lots of things accomplished today, lots of thoughts processed.  I am excited to take Camden to the chiropractor tomorrow as he hasn’t been in almost a month.  I always learn so much when we see her!

Camden also has a speech therapy evaluation scheduled for December 9th.  Because he is so behind developmentally with his gross motor skills, the chances of him being behind in speech are pretty good.  He has lots of “examples” and “encouragement” around him so I’m hoping he doesn’t need speech therapy.   Only time will tell though.

Monday, November 16, 2009

3:30 A.M. wake up call

Yes, that’s the time I’ve been awake since.  Little Camden started crying at 3:30 a.m. and didn’t go to sleep again until 6:15 a.m.  I went back to sleep for 20 more minutes, until Logan woke up.  Coffee, coffee, coffee!!!!!!

I tried sleeping in our bed and in the recliner with him.  No go.  I even  made a makeshift bed on the floor in Camden’s room and laid down there with him.  I figured I’d just clonk out there and he could do whatever—we were trapped in his room so he wasn’t really going anywhere if I fell asleep.  That worked until he smacked the back of his head into my cheek bone.  Ouch!!!!  That HURT!!!!!  And then I lost it.  No, I didn’t get angry at him.  I burst into tears and cried…..and cried….and cried.  I couldn’t stop.  It was just waves of sobs, fresh tears constantly.  I was a wreck.  And it also felt good.   As I was crying, I felt months of frustration coming out.  Each sob  was another frustration being unleashed.   I sobbed and sobbed asking over and over again, what’s wrong with Camden, why won’t he sleep, is it in my head, what do we do.  It was like 16 months of sleepless nights had finally caught up to me and I just couldn’t take it anymore. 

I was a sight!  But I think it’s what I needed to do.

Sunday, November 15, 2009

Camden faces

Indiana Camden

I looked up while we were doing school one day and there’s Camden sitting by the wall all decked out like he’s Indiana Jones.  He was sitting there so quietly and so seriously, it was funny.  Luckily, I was able to grab the camera and get a shot of him.

 

Camden loves his new winter jacket!

Camden in his new winter jacket.  He loves having the hood on.  :)

 

Fall 2009 011

Logan and Camden outside on a recent mild November day.  This was Camden’s first day with real shoes on and first time on a tricycle.  Logan was so excited that his little brother was able to ride on a tricycle—finally!

 

Fall 2009 012

My two youngest cuties!  I recently bought them similar outfits thinking it would be fun to dress them alike (while I can!).  Logan loves it!

Fall 2009 013

Logan doesn’t like his picture being taken unless Camden is on his lap.   Then he’s willing to take as many as I want to!

 

Fall 2009 023

The other night I went out with some friends and while I was gone, Josh taught Camden how to ride the four-wheeler.  He LOVES it!  He climbs on it, presses the button and goes until he crashes into something.  Then he cries until someone turns him around and he can go again.  He always has the biggest smile on his face when it’s moving.  It’s great.

Soccer pictures

Just sharing some soccer pictures from this fall of  Eli. 

 

Fall 2009 010

Fall 2009 008

Fall 2009 007

Go #41!!!!

September 2009 011

Eli enjoyed his experience playing soccer.  He’s telling us that next year it’s football for him though!

Wednesday, November 11, 2009

No voice lessons

So we’re talking about different types of music lessons the boys could take (instruments mainly).

Eli says, “I want to be a singer because I love to sing and I’m good at it.  But no voice lessons for me because I’m THAT good.”

Tuesday, November 10, 2009

Rant

First off, I apologize if I offend anybody with this post, but it is MY blog so I am allowed to write whatever is on MY mind.

Lately I’ve been thinking of all we’ve been through with  Camden.  I’ve been going back in my mind (and in past posts) and thinking of things that have been said or suggested.  I’ve been contemplating on where do we go from here.  I’ve been researching and Googling a ton.  I’ve even asked myself, is all this in my head with Camden.  The doctors can make you feel that way.

We pay over $10,000 every year in health insurance.   For that price, you’d  think everything should be covered.  No, we have $25 co-pays for doctors, $50 co-pays for specialists and we still paid over $75 for  Camden’s medicine every  month!  Plus, we have over 3 grand in medical bills to pay for his care and treatment this year—separate from the 10 grand we’ve already forked out!!!  Not only that, right now we feel that we have to stop  pursuing any further care for him because we just can’t afford it.  We haven’t even gotten the bill for his procedure last  Friday, and even though we’ve met our deductible on him (which, oh yeah, that’s $1,500 a person!), we’ll still have to pay a couple hundred on that.  It’s insane!  What  has the health care in our country come to?

Josh has some “thoughts” on  Children’s because he thinks it’s so expensive, but if you want GOOD care, it’s where you go.  Why do we have to pay a ton to receive good care?!?!?!?!?

I’ve had a couple people tell me Camden should be evaluated by a neurologist.  I don’t completely disagree with that, but in my mind I think, yeah, right, if only we could afford it…..

Even the chiropractor has suggested that he’s only using one side of his brain, and this explains the way he’s moving.  She gave us exercises to do with him to stimulate both sides of the brain, but these exercises don’t seem to be working.  It bothers me so much that one side of his body is getting so strong while the other side stays the same. 

Not to mention, in less than two months, the deductible on Camden will jump back up to $1500!!!!!!

AAAAAARRRRRRGGGGGHHHHHHHHHH!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Camden’s sick again.  He started with a fever of 103 yesterday afternoon.  Now, yes, Logan had a fever last week so this is probably where Camden got it from, but still, again?!?!?!? 

He was supposed to have his re-evaluation for physical therapy today.  He’s been in the program for six months now and they have to evaluate every three months.  I had to cancel it because he is sick and truthfully, I’m kind of glad I did.  I’m in no mood to hear how behind he still is and to set goals that are for things he should easily be doing at the age of 15 months.

It drives me nuts that doctors get paid so much money, yet they don’t know what they’re talking about!  For example, the  GI told us that foods do not aggravate reflux in babies and kids.  We questioned that because it does in adults.  He firmly told us no.  But I can distinctly remember feeding Camden sweet potatoes and then watching him reflux terribly afterwards.  I can remember eating some dairy myself and hearing him get hoarse from refluxing.  HELLO!!!!  Go online and into some reflux forums and there will be moms who will also tell you that certain foods aggravated their babies reflux!  A doctor can read all the medical books he wants to, go to the best medical schools in the world, and pass with flying colors, but reflux is such a broad spectrum and if he doesn’t live day-to-day with a child that has it and read/hear stories of other moms/dads going through it, he has no leg to stand on! 

And  the other sad thing is, no matter how much I research and learn on the Internet, if I take it to the doctor when I think I’ve found something, most likely I’m going to get blown off.    Doctors need to learn to be more personable and not treat patients like a number and one size fits all. 

People drive me nuts too!  People who think they know it all and see Camden for five minutes and say, well, he’s just fine, he’s smiling, nothing’s wrong with him.”  Oh really.  Well, come live in my house for a month and see what it’s like day-to-day, see what our nights are like—in fact, LIVE through the nights of no sleep, get up with Camden and hold him and try to calm him while he just cries  because he has no way of telling us what’s wrong.  Do the PT exercises over and over again day after day and see how he just goes right back to the way he was doing it.  FEEL the frustration!  Sit home time and time again because your baby is sick again or you don’t want to go to church, Awana or another activity with him because you don’t want him to pick up the latest germ—because if there is a germ there, he’ll find it and get sick!  Please don’t judge what I’m thinking or doing unless you’ve lived it!

It’s so frustrating to hear, “there’s nothing wrong with Camden, that’s just the way he is.”  Ha!  I don’t believe it. 

 

conclusion:

I know I am a fairly happy person who trusts in God, but today and the past few days have just been hard and I needed to rant.  I do not need therapy or an evaluation by a psychiatrist.  I simply needed to rant.  Nothing more.

Friday, November 6, 2009

Whew! It’s over

First of all, I am so blessed by all the phone calls, e-mails, FB messages, text messages from everyone.  So many people were praying and showing so much concern for  Camden.  It makes me feel so blessed. 

Camden did very well.  He will be uncomfortable for a few days, but the worst is behind us. 

We arrived at 9:15 and we were escorted right away to our little room for the morning.  Camden’s vitals were taken and wristbands put on and he was dressed in his lil’ hospital gown.  We were told the wait wouldn’t be long because Camden was first on the doctor’s list.  At about 10ish they came to give Camden his enema.  He needed to be “cleaned out” for the sigmoidoscopy so they could get the biopsy and see in there.  The first enema did nothing for Camden, so they had to give him a second one.  The second one helped a little more, but not as much as they had hoped.  At that point it was past 10:30 and the doctor said they would proceed as is.  Camden was given some medicine to make him a little sleepy but  not put him to sleep.  It helps relax Camden so that he’s not screaming and upset when they take him away from us.  We basically saw a drunk Camden.  :)

The anesthesiologist came in to ask questions.  We found out that the anesthesia medicine has egg in it.  They kept asking us if he was allergic to the egg white or egg yoke and how bad it was.  So they had to find a different anesthesia medicine to use, but apparently there’s a shortage in our country of the medicine that does not have egg in it.  We got the last one in Children’s Hospital!  Thank God.  I do not need to deal with an allergic reaction on top of recovery.  She also told us a breathing tube would be inserted while he was under the anesthesia.   Great, I thought, another thing being stuck down him!

Then the nurse came in and said, “Okay, Camden, say goodbye to Mom and Dad.”  Whew….that was tough.  I wanted to scream “No, don’t take him, he’s mine!”  I had to hold back the tears and tell myself to be tough.  The GI doctor came in and explained the procedure to us and asked us if we had any questions.  We had lots of  questions!  He answered them all.  And then they were gone.  It was 11:00 a.m. 

We waited.  About 30 minutes later, the doctor came back and said everything went well.   He brought him some pictures to show us the inside of Camden.  Everything looked good.  I was relieved…..at first.  The doctor, once again,answered any questions we had and we talked about where to go from here.  We will find out the biopsy results in 7-10 days. 

And then we waited for Camden to wake up.  And waited.  And waited some more.  Finally at 12:05 p.m., an hour and five minutes after he was first taken away, they wheeled him back in to the room.  What a sight he was!  Groggy-eyed, swollen, fat and bloody lips, IV stuck in his arm and wrapped a gazillion times.  It broke my  heart.  He saw me and tried immediately to sit up, but was caught on the IV cord.  I picked him up and held him so close.  He cried and cried and cried.  He was so hoarse it was awful.  They had trouble getting the IV in so it was located in a weird spot and they had it bandaged up a ton along with a splint thingy in it to  prevent him from bending his elbow.  It was also on his right hand which is the hand he sucks so he couldn’t get his fingers in his mouth and this upset him even  more.  Then he started coughing and his cough was real barky (a side effect of the tubes in his throat).  And that’s when I got mad.  I mean boiling mad.  I was fuming.  I was mad that we had put Camden through this suffering when everything was fine inside.  I felt like we had just done something pointless and made Camden suffer.  I kept picturing the happy little boy that he had been that morning, and then I would look at the little boy in my lap and grrrrr……..

He cried on and off for 30 minutes.  He drank a little bit but he had some trouble swallowing it.  Then he fell asleep again.  And we waited some more.  We were allowed to leave at 1:15 p.m.  Camden was still sleeping then, but he had tolerated the water okay so they felt we were okay to leave.  That and we convinced them that we were okay to leave, we wanted to get out of there!  You can only spend so much time in a room the size of a large closet!

Camden will be uncomfortable for a few days.  His throat is irritated so he’s hoarse and he’ll have that cough for a few days too.  Once we get the biopsy results, we’ll decide where to go from there—depending on what they show, if anything.  The GI talked about putting Camden back on his Prevacid to control the flare-ups he does have from time to time, but I don’t think I want to do that.  He also talked about doing a PH probe for 24 hours to see how often he’s refluxing and how acidic it is and if it causing inflammation.  I don’t really think we’ll do that though.  Camden doesn’t reflux every day so what if the probe is put in during a time when he’s not refluxing.  Plus, that doesn’t give us anymore answers besides yes, he’s refluxing and here’s how much.   Camden also has constipation issues.  Apparently he has quite the backup of  poo inside him, even when two enemas were given to him.  GI said to give him prune juice and if that doesn’t help, then he’ll prescribe a medicine for that.  I’m not too keen on that idea either.  We don’t need anymore medical bills to deal with.  It’s too much.  Josh and I looked at each other and said, “Enough.”

Camden has been sleeping since we got home, but I think I hear a hoarse little voice so I’m going to sign off.  Thank you everyone for all your prayers!  We appreciate them so much!  Camden was such a trooper.

Thursday, November 5, 2009

Getting that feeling again.

Okay, I’m getting that feeling.  You know the one where you want to run away so you don’t have to face what’s ahead?  I got this same feeling the night before Camden’s tubes.  As I was sitting on the floor in his room with him crying and me feeling helpless not being able to nurse him for comfort, I contemplated ways we could escape….run away to Mexico,  bury ourselves in a hole and come out when it’s passed, hide out in a cave…you know, totally logical reasons at 3 a.m.  I just did not want my baby to go through what we were about to go through.  I didn’t want my baby being placed into someone else’s hands and me sitting in another room, helpless.

Now here I sit after a long, stressful, busy week and I have the same feelings.  What can I do to get out of this?  Or maybe just fast forward so it’s done and over with? 

God, I need your strength and peace to wash over me in tidal waves. 

The nurse just called to confirm everything for tomorrow.  It made the feeling more real and the anxiety bigger.  The surgery (endoscopy, sigmoidoscopy and biopsies) are scheduled for 10:30 a.m.  We need to arrive by  9:15 a.m.  They will give Camden an enema to “clean him out.”  He cannot eat after midnight and clear liquids only up to three hours before surgery. 

Honestly, I don’t think they are really going to find anything from this procedure.  I feel like we’ve been pushed from one doctor to the next, one test to the next and we really aren’t truly going to get an answer from this test.  It’s just going to rule out things instead.   That may be a bad attitude, but I’m sorry, it is my attitude. 

I am not in a very good mood right now.  I probably won’t be until this is all over with tomorrow.  Right now all I keep  picturing is my baby boy lying in a hospital bed with a little gown on looking scared and sad. 

Please say some extra prayers that I am able to feel peace and comfort tonight.  That I am able to turn all of this over to God and let Him deal with it. 

That the physician will find something if he needs to or not find something...whatever the need is. God is in control.

Tuesday, November 3, 2009

No doubt?

I'm sensing maybe God is trying to tell me something....or maybe not. Camden has had some rough nights lately. Me too.

At first I thought it was just a "separation anxiety" thing, but I'm doubting that.

No new foods were introduced. Everything is plain and simple and regular in anticipation of the scope on Friday.

I'm baffled. I do not know what is wrong with him. And I'm realizing the importance of doing the scope to rule out things.

He just cries at night. He will not lay down flat. He will not even lay on a pillow with me in my bed. Sleeping in the recliner with him only lasts so long. I can't even RECLINE in the recliner because he cries with that. Sleeping on the floor in the living room works for a bit. He just slumps over me. Letting him cry it out is....well, just that....him crying and crying and crying and crying and crying, which in turn, wakes the rest of the house up.

It's been a rough couple nights. He shows no sign of sickness during the day. In fact, he's his normal happy self. He even naps! These symptoms somewhat mimmick reflux, especially the not being able to lay flat. It could also be his ears, if those tubes have already fallen out.

In any case, I am feeling more and more confident about doing the scope.

And on a more positive note, his PT reevaluated him this morning. He is now at 29% behind versus the more than 50% he was three months ago. Hooray! He's not walking yet and 9-16 months is considered "normal" range to start walking in. So he's got 1/2 month to start walking. We shall see. She's still baffled as to why one side of his body is so much stronger than the other. She even asked me if anyone else told us why...ENT, GI, chiro. It's an unexplained mystery. Anyone out there have any suggestions????

Sunday, November 1, 2009

Halloween Outreach

I had the opportunity to participate in a Halloween Outreach this year.  It was the fourth year for Isaac and Eli, but a first for me.  I was never able to do it because I had a baby too young to go out in the cold or a sick toddler.  I was blessed.

What we do is we dress up as shepherds and go out during the trick-or-treat time.  We ask the people if we can pray for them and hand them prayer cards and an invitation to our church’s Christmas program.  We certainly stand out dressed as shepherds compared to all the other yucky, scary costumes out there!

This outreach is something that is a little out of my comfort zone, but I figured if my boys did it, then I certainly could.  I was so blessed by my boys.  They were so excited to run up to a house, ring the doorbell and then wait to ask the people if they could pray for them and hand out the forms and cards.  And what a great example of witnessing to others!  We are truly being the LIGHT in the darkness!  I didn’t have to even do any talking because the boys did it all. 

We can talk and talk about how we’re supposed to be a light and example of God’s love.  I know I’ve told this to my boys over and over again.  I truly felt like this was an opportunity to SHOW what being a light is.  We had a great time and I can say that we will be doing this for years and years to come. 

It was even an example for Logan.  When he asked what we were doing, I wondered how I could explain it to him so he would understand.  I mean, he’s three.  I simply told him we were going to tell others about  Jesus.  He loved it!

Oh, and yes, the boys still got candy.  They were allowed to pick out 15 pieces and then the rest was donated to the children’s ministry at church. 

Enjoy the pictures.  I wish I had a picture of me with the  boys.  Maybe next year.

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Isaac and Collin getting dressed up.

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Will and Logan

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Grandpa with all his shepherds and shepherdess.

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Logan, Grandpa and Ellie

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Coming out of a house.  This was Logan’s favorite house because they had clowns there.  He’s still talking about it.  :)

Thanks

I wanted to thank everyone for their words of encouragement, advice, opinions, prayers, thoughts, everything!  It’s overwhelming and I appreciate it so much.

I have my own opinions, but I do take everyone’s advice into consideration. 

We’re going forward with the scope with much prayers.  I honestly do not expect to find anything major, but I feel  we must do it to eliminate our wondering.