First off, I apologize if I offend anybody with this post, but it is MY blog so I am allowed to write whatever is on MY mind.
Lately I’ve been thinking of all we’ve been through with Camden. I’ve been going back in my mind (and in past posts) and thinking of things that have been said or suggested. I’ve been contemplating on where do we go from here. I’ve been researching and Googling a ton. I’ve even asked myself, is all this in my head with Camden. The doctors can make you feel that way.
We pay over $10,000 every year in health insurance. For that price, you’d think everything should be covered. No, we have $25 co-pays for doctors, $50 co-pays for specialists and we still paid over $75 for Camden’s medicine every month! Plus, we have over 3 grand in medical bills to pay for his care and treatment this year—separate from the 10 grand we’ve already forked out!!! Not only that, right now we feel that we have to stop pursuing any further care for him because we just can’t afford it. We haven’t even gotten the bill for his procedure last Friday, and even though we’ve met our deductible on him (which, oh yeah, that’s $1,500 a person!), we’ll still have to pay a couple hundred on that. It’s insane! What has the health care in our country come to?
Josh has some “thoughts” on Children’s because he thinks it’s so expensive, but if you want GOOD care, it’s where you go. Why do we have to pay a ton to receive good care?!?!?!?!?
I’ve had a couple people tell me Camden should be evaluated by a neurologist. I don’t completely disagree with that, but in my mind I think, yeah, right, if only we could afford it…..
Even the chiropractor has suggested that he’s only using one side of his brain, and this explains the way he’s moving. She gave us exercises to do with him to stimulate both sides of the brain, but these exercises don’t seem to be working. It bothers me so much that one side of his body is getting so strong while the other side stays the same.
Not to mention, in less than two months, the deductible on Camden will jump back up to $1500!!!!!!
AAAAAARRRRRRGGGGGHHHHHHHHHH!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Camden’s sick again. He started with a fever of 103 yesterday afternoon. Now, yes, Logan had a fever last week so this is probably where Camden got it from, but still, again?!?!?!?
He was supposed to have his re-evaluation for physical therapy today. He’s been in the program for six months now and they have to evaluate every three months. I had to cancel it because he is sick and truthfully, I’m kind of glad I did. I’m in no mood to hear how behind he still is and to set goals that are for things he should easily be doing at the age of 15 months.
It drives me nuts that doctors get paid so much money, yet they don’t know what they’re talking about! For example, the GI told us that foods do not aggravate reflux in babies and kids. We questioned that because it does in adults. He firmly told us no. But I can distinctly remember feeding Camden sweet potatoes and then watching him reflux terribly afterwards. I can remember eating some dairy myself and hearing him get hoarse from refluxing. HELLO!!!! Go online and into some reflux forums and there will be moms who will also tell you that certain foods aggravated their babies reflux! A doctor can read all the medical books he wants to, go to the best medical schools in the world, and pass with flying colors, but reflux is such a broad spectrum and if he doesn’t live day-to-day with a child that has it and read/hear stories of other moms/dads going through it, he has no leg to stand on!
And the other sad thing is, no matter how much I research and learn on the Internet, if I take it to the doctor when I think I’ve found something, most likely I’m going to get blown off. Doctors need to learn to be more personable and not treat patients like a number and one size fits all.
People drive me nuts too! People who think they know it all and see Camden for five minutes and say, well, he’s just fine, he’s smiling, nothing’s wrong with him.” Oh really. Well, come live in my house for a month and see what it’s like day-to-day, see what our nights are like—in fact, LIVE through the nights of no sleep, get up with Camden and hold him and try to calm him while he just cries because he has no way of telling us what’s wrong. Do the PT exercises over and over again day after day and see how he just goes right back to the way he was doing it. FEEL the frustration! Sit home time and time again because your baby is sick again or you don’t want to go to church, Awana or another activity with him because you don’t want him to pick up the latest germ—because if there is a germ there, he’ll find it and get sick! Please don’t judge what I’m thinking or doing unless you’ve lived it!
It’s so frustrating to hear, “there’s nothing wrong with Camden, that’s just the way he is.” Ha! I don’t believe it.
conclusion:
I know I am a fairly happy person who trusts in God, but today and the past few days have just been hard and I needed to rant. I do not need therapy or an evaluation by a psychiatrist. I simply needed to rant. Nothing more.